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Illinois Epilepsy-Mental Health Outreach Initiative 2011-

The clinical presence initiative focuses on implementing transformational rural outreach epilepsy care.


The primary goal of the independent community-based population health management (PHM) hub leverages an innovative model for delivering comprehensive care for epilepsy-related challenges. The PHM hub forms the foundation of our CARF-accredited rural population health initiative. This platform catalyzes comprehensive patient-centered care in rural Northeastern Illinois.

The clinical implementation of such a PHM strategy hinges on the scalability of inter-community networking. Specifically, the hub coordinates near real-time matching of local psychosocial services, and geographically distant medical specialty needs for children (Rossi, 2014) and adults residing in these rural regions. Health information technologies bridge our patient-centered PHM presence with Rush University Medical Center (RUMC), an urban-based tertiary care medical center located about 70-80 miles away from these communities.

The McHenry County-based PHM initiative combines the following 5 innovative components:

(1) A HIPAA-compliant portable video-conferencing communication protocol and technology bridges on-demand access of patients in ambulatory and rural emergency department settings with specialists based at RUMC. Care also relies heavily on community-based healthcare providers and psychosocial agencies.

(2) A novel HIPAA-compliant web-based networking technology and electronic health record (EHR) connects patients in real-time with all available community-based resources,

(3) Ambulatory biosensor monitoring & internet of things (IoT) integrated data streaming are leveraged. Specifically, ultra-portable EEG telemetry, total body motion capture sensors for assessing seizure-like spells, and holographic based neurocognitive assessment tech are incorporated into the IoT integrated workflow.

(4) A personalized interactive 3D-animation website based on a computer-intensive gaming platform is employed. Its education-rich content targets epilepsy and mental health therapies. This platform also accommodates a closed virtual classroom for live dynamic educational sessions,

(5) Finally, the independent community-based CARF-certified PHM hub (operated by the Epilepsy Foundation of North Central Illinois) coordinates the above innovative components.

This health information technology-intensive rural outreach care delivery model overcomes numerous barriers. The hub bridges coordinated geographically-remote comprehensive medical, surgical and psychosocial care. It significantly expands the geographic reach of a distant tertiary care medical center to rural regions lacking specialty care. Preliminary data suggest that such an independent commubnity-based platform efficiently maximizes patient access to community resources, medical and mental health expertise, and customized patient education (Rossi et al, 2017; 2018).

Pertinent References


1. Rossi MA (2014). Improving patient-centered care coordination for children with epilepsy: Version 2.0 upgrade required. Epilepsy Curr 14(3):145-146.

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Visit RUSH Visit the Epilepsy Foundation Visit Danny Did Visit The Mary Caitlin D. Keane Website Visit Neurologica Visit Simpleware Visit the American Epilepsy Society
Visit Options and Advocacy of McHenry County Visit JanssenR&D/J&J Pharma R&D Visit The Mental Health Board Visit Vidyo Visit Cyberonics Visit Lundbeck Inc