The clinical presence initiative focuses on implementing transformational rural outreach epilepsy care.
The primary goal of the independent community-based population health management (PHM) hub leverages an innovative model for delivering comprehensive care for epilepsy-related challenges. The PHM hub forms the foundation of our CARF-accredited rural population health initiative. This platform catalyzes comprehensive patient-centered care in rural Northeastern Illinois.
This health information technology-intensive rural outreach care delivery model overcomes numerous barriers. The hub bridges coordinated geographically-remote comprehensive medical, surgical and psychosocial care.
It significantly expands the geographic reach of a distant tertiary care medical center to rural regions lacking specialty care.
Preliminary data suggest that such an independent commubnity-based platform efficiently maximizes patient access to community resources,
medical and mental health expertise, and customized patient education (Rossi et al, 2017; 2018).
The clinical implementation of such a PHM strategy hinges on the scalability of inter-community networking. Specifically, the hub coordinates near real-time matching of
local psychosocial services, and geographically distant medical specialty needs for children
(Rossi, 2014)
and adults residing in these rural regions. Health
information technologies bridge our patient-centered PHM presence with Rush University Medical Center (RUMC), an urban-based tertiary care medical center located about 70-80 miles away from these communities.
The McHenry County-based PHM initiative combines the following 5 innovative components:
(1) A HIPAA-compliant portable video-conferencing communication protocol and technology bridges on-demand access of patients in ambulatory and rural emergency department settings
with specialists based at RUMC. Care also relies heavily on community-based healthcare providers and psychosocial agencies.
(2) A novel HIPAA-compliant web-based networking technology and electronic health record (EHR) connects patients in real-time with all available community-based resources,
(3) Ambulatory biosensor monitoring & internet of things (IoT) integrated data streaming are leveraged. Specifically, ultra-portable EEG telemetry, total body motion capture sensors for assessing
seizure-like spells, and holographic based neurocognitive assessment tech are incorporated into the IoT integrated workflow.
(4) A personalized interactive 3D-animation website
based on a computer-intensive gaming platform is employed. Its education-rich content targets epilepsy and mental health therapies.
This platform also accommodates a closed virtual classroom for live dynamic educational sessions,
(5) Finally, the independent community-based CARF-certified PHM hub (operated by the Epilepsy Foundation of North Central Illinois) coordinates the above innovative components.
Pertinent References
1. Rossi MA (2014). Improving patient-centered care coordination for children with epilepsy: Version 2.0 upgrade required. Epilepsy Curr 14(3):145-146.